Power Up for Parents

  • What is Power Up for Parents?

    Power Up for Parents is a mobile app designed to promote parent/caregiver involvement in Shared Decision Making in Child and Adolescent Mental Health Services (CAMHS).

     

    What is Shared Decision Making?

    Shared Decision Making (often referred to as SDM) is a cognitive, emotional, and relational process where service providers and service users collaborate to make healthcare decisions. Research findings indicate that SDM is associated with higher levels of improvement in psychosocial difficulties and treatment outcomes over time.

  • About the study

    Overview

    The study consists of two stages: the development stage (Stage 1) and the pilot testing stage (Stage 2). There will be periods of the study where the two stages run concurrently.

    Stage 1: During the development stage, focus groups and interviews with parents/caregivers and clinicians are conducted and the interview topic guide aims to capture parent/caregiver experiences of making child mental health decisions, coping strategies used, preferences for involvement in shared decision making, decision support needs, and situations within which the app can be best used.

    Sign up to be part of a focus group.

    Stage 2: During the pilot testing stage, parents/caregivers are randomly allocated to use either Version 1 of Power Up for Parents, Version 2 of Power Up for Parents, or to not use the app but to complete the same questionnaires and receive treatment as usual. 

    We are looking for app testers! Sign up now to take part (when prompted for a participant ID please enter 700)

    Key information

    Objective: To develop and assess the acceptability and feasibility of Power Up for Parents.

    Duration: October 2018 - October 2019 

    Funder: This is a TEAM ITN project funded by European Union’s Horizon 2020 research and innovation programme under the Marie Skłodowska-Curie grant agreement No. 722561.

    Ethics approval: UCL ethics approval 12009/003.

    Main contact: Shaun Liverpool

    Further information about the study.

  • Data protection

    University College London (UCL) will act as the data controller for this study. This means that they are responsible for looking after your information and using it properly. UCL will keep identifiable information about you for 3 months after the study has finished.

    If you withdraw from the study, we can delete all of your information if this is your desire or keep the information about you that we have already obtained. To safeguard your rights, we will use the minimum personally-identifiable information possible.

    For the purpose of this research we will request your contact details ONLY. Researchers will use your name, and contact details to contact you about the research study, and make sure that relevant information about the study is recorded, and to oversee the quality of the study. The student researcher and immediate supervisors are the only people who will have access to your contact information and it would be used only to contact you to schedule interview dates or audit the data collection process.

    Your information will only be used by researchers to conduct research in accordance with the UK Policy Framework for Health and Social Care Research. This information will not identify you and will not be combined with other information in a way that could identify you. The information will only be used for the purpose of health and care research, and cannot be used to contact you for other reasons or to make decisions about future services available to you, such as insurance.

    For further information please read the full Data Protection and Information Governance statement.

  • Get involved!

    Who can participate?

    We are looking for parents or primary caregiver of a child or young person up to 24 years old with mental health challenges to help us with this study by taking part in interviews and focus groups.

    Participants must be:

    • Over 18 years old;
    • Primary caregiver of a child or young person up to 24 years old with mental health challenges;
    • Comfortable speaking and understanding English;
    • Have access to a computer, phone or tablet with Internet.

     

    What are the possible benefits and risks of participating?

    While there is no guaranteed benefit in taking part in this study, one advantage is that participants will get to help shape an app that caregivers, clinicians, and children may use in the future. Most participants find taking part in research rewarding, as they contribute to the development of knowledge that may benefit themselves and others.

    There are no known risks to taking part in these interviews or focus groups. If any risks become known during the study, participants will be informed straight away. 

    How do I get involved?

    We are looking for volunteers to test the app. Sign up now!

    Alternatively, you can still sign up to take part in a focus group.

    If you have any questions about the study, please contact Shaun Liverpool

    All participants attending focus groups or travelling to meet us for app testing (optional) will be offered a travel reimbursement of £10.

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